calliecritturs
Posted : 6/17/2009 9:37:00 PM
oranges81
He's not willing to use a wheelchair yet cuz it scares him. We both know that a wheelchair is a very good possibility in his future. Once the back yard is done, he wants to get a pool back there to use
Oh man, I SO understand that. David likes to "go and DO stuff" -- in fact sometimes it's difficult to rein him in. He likes to travel, to do everything from go to art festivals, museums, plays, shopping, and zillions of other things. We used to spend a small fortune on renting ECVs for me at the theme parks because then I could keep up with him.
One thing that helped in the beginning was I got a folding stool and kept it in the car. I can't walk even 10 minutes ... and standing is a HUGE no no for me. Instant horrible pain. However -- taking my little folding stool with me -- I could walk 50 feet and sit for a minute. Walk a bit further and sit. See something I like? Stop and sit while I look at it. I've done this for YEARS. I actually have both a folding chair (just a plain black metal folding chair) AND a folding stool I keep in the car. The stool is easier for me to carry. But if I have to spend much time sitting then the chair is better.
But it enabled me to keep "doing" things ... David understood it was a sacrifice and he was good about helping me but it was essentially a compromise. It helped me to do the things HE liked ... but it also helped him realize I needed some help.
Finally -- we decided (and I resisted this -- oh man oh man I RESISTED IT) to get me a wheelchair. Mostly so I could have the wheelchair to go to movies (movie seats absolutely kill my back) and so that I would be a little more portable. I'm a big lady and I had a REAL problem with letting David push me. He's not a huge man and it pushes every negative button in my head to be that dependant.
But he will let ME get out and walk when ... for example, we come to a hill. I CAN walk ... not well and not for a long time, but I surely can walk up an incline and I don't want him pushing ME. And having the wheelchair as 'balance' it makes it easier for me anyway to have something to push. So ... I'll get out and walk if the ground is rough or if it's an incline. But wow -- it's helped SO much for us to be able to do things.
The darned wheelchair stays in the frigging CAR. I hate it -- I hate that i Have to use it ... BUT I also realize that it makes "living" more possible for me. Yeah, I can go TO the library and enjoy it when I have something to sit down in.
But for me it was a difficult step but a good one to make IN PART. I refuse to use it all the time. Because when I give up walking I won't be ABLE to. I can't let that happen. But this is simply a compromise that I made to be able to keep up with Davey and do what he likes.