Ugh--I'm scared--need good thoughts and prayer

    • Gold Top Dog

    I went thru a cancer scare last year, so I know how unnerving it can be. I also dealt with some insurance issues. Hang in there and try not to get too frustrated. I'd want it done before vacation too, so I hope that works out for you. If the PET Scan shows something unfavorable, don't be afraid to ask for a 2nd opinion. I will keep you in my thoughts and prayers that the scan shows cold spots and nothing to worry about.

    • Gold Top Dog

     You are in our thoughts here, as well!

    • Gold Top Dog

    Glad you posted -- sigh - insurance can be such a pain.  But at least I've got something more specific to direct those good thots and prayers at!!  *hugs*

    • Gold Top Dog

    Best Wishes!  Don't you wonder why you pay premiums if insurance companies don't want to approve anything when you need it? Obviously this sounds like standard-of-care, not some random procedure that is never used for this diagnosis.... sorry you have to go through this, and hopefully it gets taken care of before your vacation.

    "cold" vibes coming your way!

    • Gold Top Dog

    Good thoughts and "cold" vibes coming at ya.

    • Gold Top Dog

    Well, wish me luck guys--the insurance came through and I'm getting my scan tomorrow at 1 pm....... 

    • Gold Top Dog

    Sending good PET Scan vibes your way. The waiting is the worst, so I'm really happy that the insurance approved it for you.

    • Gold Top Dog

    Still keeping you in my thoughts!

    • Gold Top Dog

    Thats frightening. I sure hope it's just a little "nothing" Keep us UTD,

    Thought and good vibes your way

    • Gold Top Dog

    Well, it's not good.  The lymph nodes in question "lit up."  The doctor said it was good that there were no other lit up spots anywhere else, so if it is the worst then it appears to just be affecting those 2 nodes.  We are leaving for vacation tomorrow, and the doctor told us that we should go ahead and go, that he does not think that waiting a week is going to make a difference, and that it would probably be a week to see the specialist they are sending me to for the biopsy anyway.  So, next Monday I go in.  I'm not sure if they'll do the biopsy right there or later.

    I took the rest of the day off work to kind of process this.  The doctor says that there is still no guarantee that it is cancer and that sometimes infections will cause things to light up, but  I'm terrified.  I'm trying to be positive and doctor said that if it is lymphoma (which if it is cancer is what it would most likely be) that it is very treatable but it is *still* cancer.....

    • Gold Top Dog

     ((hugs))

    Christina, how terrifying for you.  ... I wish there was something I could say or do to help.

    Do your best to enjoy your vacation and not to worry too much, try to think positive... it could still be an infection, some antibiotics (i have no idea, actually, but I'd guess antibiotics?) and you'll be back to better than ever in no time!

    I'm thinking of and praying for you. 
     

    • Gold Top Dog

    dang..I'm sorry Christina

    ...((hug))....we're here for you...all of us.

    • Gold Top Dog

    I'm sorry to hear that they 'lit up'.  I know it's hard, but try to enjoy your vacation.  Still praying that it won't be cancer.

    • Gold Top Dog

    Hugs from here too. I do know how frightening this is and all I can tell you is try to focus on the best possible outcome, not the worst. As long as there's a possibility it isn't cancer, then there's a possibility and that's a good thing. If it turns out it is, you'll take the next step.

    My cancer scare was an elevated CA125 level. Dr. wanted me to come right in and discuss hysterectomy. I did a lot of reading and everyone said I should just do it and most thought that the elevated levels were surely a sign of ovarian cancer. I had the family hx, so it made it all the more frightening. I asked to be referred to a GYN oncologist and he had me redo the CA125. It came back WNL and so did the pelvic ultrasound. It did give me the final impetus to get genetic testing done, and it came back showing that I don't carry the genetic marker that would make me high risk - whew.

    Anyway, I hope that the outcome for you is similar and you're able to enjoy your much needed vacation. I'll keep you in my thoughts and prayers in the meantime.

    • Gold Top Dog
    sillysally

    Well, it's not good.  The lymph nodes in question "lit up."  The doctor said it was good that there were no other lit up spots anywhere else, so if it is the worst then it appears to just be affecting those 2 nodes.  We are leaving for vacation tomorrow, and the doctor told us that we should go ahead and go, that he does not think that waiting a week is going to make a difference, and that it would probably be a week to see the specialist they are sending me to for the biopsy anyway.  So, next Monday I go in.  I'm not sure if they'll do the biopsy right there or later.

    I took the rest of the day off work to kind of process this.  The doctor says that there is still no guarantee that it is cancer and that sometimes infections will cause things to light up, but  I'm terrified.  I'm trying to be positive and doctor said that if it is lymphoma (which if it is cancer is what it would most likely be) that it is very treatable but it is *still* cancer.....

    Sounds like you got some good advice/information from your doctor. I'm so sorry you are going through this. He is right, even in the worst case senario (lymphoma), it is VERY treatable and healthy young women like yourself almost always get through it! I have a friend in medical school who's wife had the same exact thing happen and she is healthy, happy, and with two kids since then. You will be fine, just try to relax on your trip and then come back with a fighting spirit to get this figured out.