Just wanted to let everyone know how much I appreciate the prayers when I posted about my eyes. I am happy to report that the Prednisone is doing what we hoped it would and is drying up the bleeds in my eye. I have been able to taper down twice now from 60 mg initially and now am on 20 mg.
Doctor told my mom today when she asked if I stop taking the steroids if the leaks will start again.. his answer was "Well, we hope not." I would love definate answers but since this is a very rare disease, we can only go by trial and error.
I also got a new primary care doctor and will hopefully get to the bottom of the auto immune disorder that causes this to begin with. There is no cure, but if I have a chance of going into remission if they treat the auto immune disorder. I'll see my new doc first week of May. That was an experience in itself trying to find a new doctor. I had 2 doctors refuse to even see me when they were told I had a rare eye disease, said I was outside their area of expertise. Well, duh.. I didn't ask them to treat my eye, but they wouldn't listen.
So, thanks everyone for your prayers!!! [8|]