mrstjohnson
Posted : 5/17/2012 11:16:29 AM
Thanks for the suggestions on the cuff and thermometer. We actually already practice at home all the time. Your vibes worked though, they got weight, height, temp (under arm) and blood pressure!
The good news: No new sites have been found - we are still just dealing with the knee
The bad news: She is going to have to have a procedure where they drain the liquid from her knee and inject her with steroids. So far, we have been able to avoid the whole steroid thing and stick with NSAIDS. However, with her recent growth spurt, her right leg (the infected leg) has grown signigicantly longer than her left leg. That's what the arthritis does, it causes overgrowth. In order to avoid long term exposure to steroids (via pill or injection) we have to try this procedure. It may not work; however, if it does that will be great! If it doesn't she will have to get weekly injections or if I can get her to take a pill she can do that instead. Because of her age and her ability to take swallow pills whole (she's been doing it since she was 3 - which is odd they say for that age) I would prefer the pill form. If we don't do anything and keep the course, her leg will continue to grow faster and she could end up with a lot of issues later.
I am waiting for the hospital to call me to schedule. The one thing I am grateful for is that we are dealing with U of M. I know that the best will be working on her and on her treatment. The absolutely scary thing is they will have to put her under to do the procedure. That scares me to death.
((((JULIE))) Thinking of you today