PCOS

    • Gold Top Dog

    My doctor doesn't recommend the pill for 35+ women, especially in higher stroke risk categories (overweight and high cholestorol are also risk factors).

    The benefits of surgery WOULD be very great for me.  My doctor is in agreement with me on this one - he felt strongly that there was a good chance when we were planning the more minor surgery last fall, that he'd simply look around and decide to take it all out.  Besides the PCOS, there's the endometriosis, and my symptoms are pointing to involvement of my colon, not mention other organs.  My doctor is also puzzled about certain other symptoms that I have which I won't go into, that seem to indicate something more complicated than just one cyst.

    After twenty years of dealing with this, I'm hardly "rushing" to do anything.  Wink 

    • Gold Top Dog

    brookcove

    After twenty years of dealing with this, I'm hardly "rushing" to do anything.  Wink 

    Sorry, I didn't mean to imply that. I just hear so many women say "I wish they'd just take it all out" and I used to feel the same way until I was faced with the real prospect. I just didn't realize how helpful those little ovaries are (or should be) but I would've had them taken out in a heartbeat if there'd been any signs of cancer or I had other problems. I know that many women suffer for years with problems and are quite happy after having a hysterectomy, so I completely understand how you feel. 

    I've had 3 Gyns who had really encouraged me to have a total hysterectomy, so I finally had the genetic testing for ovarian cancer done last spring and I'm not as high risk as we'd though - whew!!! 

    • Gold Top Dog

    cakana

    [Before you rush in to have a total hysterectomy, you might want to do a bunch of reading about surgical menopause. I was very close to needing a total hysterectomy last year and the research I did led me to believe that the benefits of the surgery would have to be VERY great to outweigh the negatives of having my ovaries removed.

     

     AMEN!  When I was facing my hysterectomy in '96 at the age of 31, I participated in several online hysterectomy groups.  The negative consequences those women suffered from the loss of their ovaries and the effects of artificial hormone replacement therapy were TERRIBLE.  Although the GYN tried VERY HARD to scare me into letting him take my ovaries ("Oh, you might get ovarian cancer, we won't know it" "They'll probably fail anyway, we should take them out" "It's just what we do, we take out everything";).  I wrote all over my chart DO NOT REMOVE OVARIES UNDER ANY CIRCUMSTANCES! And told the doctor as I faded away on the fun shot, "Take my ovaries, I will sue your pants off and go on the news."  LOL!  I am ridiculously happy having no uterus.  But, given my horrible sensitivity to hormones, I need my own, not artificial ones.  My ovaries have not failed, I do not have any of the terrible side effects other women have had (dryness, premature aging, menopause, etc.) and my GYN recently told me it's actually EASIER to detect some ovarian cancer symptoms in women w/o uteruses because they can palpate the ovaries much more easily and don't have to feel them through or around the uterus that is sometimes full of fibroids, adhesions, etc.

    Also, during my history w/endometriosis I always went to fertility specialist GYNs even though I wasn't looking to get pregnant.  They are usually more up to date on procedures and new treatment options that will preserve fertility and improve life quality.  I found regular OB/GYNs tended to be about 5 years behind the latest advances or not experienced in the use of new procedures because they'd refer their patients over to the fertility specialists who had the equipment or had been trained in new procedures. 
     

    • Gold Top Dog

    calliecritturs
    Sorry -- I'm stubbornly refusing to be THAT much a part of the text generation -- PCOS?  real words pretty please???

    Geez Callie, PCOS as an acronym has nothing to do with texting. It's like.. ALS. It's what the syndrome is commonly called, that's all.

     

    As for having PCOS.. I strongly suspect I do, but I haven't been diagnosed. I've noticed that if I get above a certain weight, my period is either ridiculously irregular or absent, and if I'm below that weight (actually it's a ballpark of like..10-15 pounds), my period's regular. My other symptoms are present above or below that weight, though they might get stronger or weaker depending.

    You'd think I'd just stay at a weight that keeps my symptoms at bay, but noooo... *sigh*

    • Gold Top Dog

    I also have been unofficially diagnosed with PCOS.  The low GI diet definitely is key.  My regular doctor also tried to give me Metformin, which helps with the insulin resistance, but I have not taken it yet because I feel it's just a bandaid.  My naturopathic doctor and my acupunturist both feel it can be resolved with diet & natural methods. 

    The best low GI eating plan I feel is from The New Glucose Revolution.  There are several books and cookbooks that help.  I have never felt as good as when I truly follow this eating plan.  The link below is the website and there is a page with all their books.  They have one specifically for PCOS, but I find the regular book and the cookbook to be really helpful. 

    http://www.glycemicindex.com/

    I would really recommend reading one of these books, they are at Borders (or amazon).  But also, seeing an acupuncturist/chinese herbalist can provide great benefit.  No, this isn't easy, but it can be done and it can be done without drugs/birth control.  Please feel free to contact me if you wanna talk, have questions or need support.  Lord knows I need some myself.  =)

    • Gold Top Dog

    I'm on a Weight Watchers group just for PCOS girls, and many of them have discussed how Metformin helps, BUT, only in conjunction with the plan (ie, diet awareness and regular activity).

    Exercise hurt like heck for a long time (cramps), but I stuck with it and that symptom was one of the first to go - well, mostly, heavy exercise still brings on cramping.  What the WW "Cysters" who use Metformin say, is that it helps with the raging cravings for food - bad food, lol - that you get, especially after exercising or late at night.

    There's another lady in my meeting with PCOS, and she said the same thing brought her to WW that brought me there - she thought she was nuts, she exercised and still couldn't lose weight - or gained weight!  She hadn't even realized she was coming in from a nice walk, going to the pantry, and eating something like a handful of cookies and a glass of milk - or a coke and a bag of chips.  She lost 58 pounds in nine months and made her lifetime goal the same week I made my first ten percent goal.

    My doctor wanted me to try to lose weight on my own before we tested for insulin resistance and tried the Metformin - and previously he was pretty dead set on the endoscopic surgery anyway.  He's still a little nervous about some atypical problems I'm having.  I've got an appointment with another specialist in six weeks and then we'll revisit the big picture.  At the rate I'm losing weight, I'll have lost ten more pounds by then, bringing my BMI below the "obese" mark.  If I'm still having significant symptoms then, we'll have many more options to explore.  Most likely I will - I've been underweight in the past and still symptomatic.

    Two days ago I was training my young dog to work on his confidence with the ram.  The ram weighs 300 pounds and is a nice boy, he just knows how big he is and likes to do his own thing.  Ted and I between the two of us moved the ram through an unfenced area, about 200 feet to a lean to pen.  Normally, the dog pushes and the person sort of acts like a moving fence, giving the dog a place to push the sheep against (not physically).  But I noticed that Ted's confidence isn't strong enough yet to push the ram, but the ram will respond to being pushed around by people just fine.  So we reversed roles - I played "dog" and covered the ram's escape and pushed him forward, while Ted drew him on towards the pen.

    It's hard work being a dog!  There's no way I could have done that when I weighed 240 pounds.  When we were done and the ram was penned, Ted had a huge grin on his face that said, "Wow mom, you really came through for me, thanks!" 

    • Gold Top Dog

    The only thing about Weight Watchers is that it doesn't teach you how to eat low GI, which is necessary to PCOS.  I was in WW and lost 40 lbs, thought it was the greatest thing ever.  My naturopath told me it wasnt gonna work, so I poo-poo'd him because it was working.  It was only after following the true low GI plan that I realized what he was talking about.  On WW you can eat anything as long as your in points.  Yes, you learn to better manage those points, but mine and many others bodies can't handle grains and gluten and things that are high GI.  When I follow the low GI plan, it's not as much about the calories as it is leveling my blood sugar throughout the day, that makes the weight come off.  Yes, you have to use more than you eat, but I and my alternative doctors all feel you don't get enough calories on WW.  If you can use WW as a tool, while still following low GI, like for the accountability, then yes it works. 

     Also, I don't know if you have already, but you should get your thyroid checked.  If your TSH is higher than 2 or 3, you definitely need treatment, regardless of what a doctor may say.  Thyroid problems and PCOS also come in pairs.  No offense, but most Western MD's don't know squat about these issues and really handling them.  They just wanna hand out a Rx to fix everything. 

    • Gold Top Dog

    brookcove

    Two days ago I was training my young dog to work on his confidence with the ram.  The ram weighs 300 pounds and is a nice boy, he just knows how big he is and likes to do his own thing.  Ted and I between the two of us moved the ram through an unfenced area, about 200 feet to a lean to pen.  Normally, the dog pushes and the person sort of acts like a moving fence, giving the dog a place to push the sheep against (not physically).  But I noticed that Ted's confidence isn't strong enough yet to push the ram, but the ram will respond to being pushed around by people just fine.  So we reversed roles - I played "dog" and covered the ram's escape and pushed him forward, while Ted drew him on towards the pen.

    It's hard work being a dog!  There's no way I could have done that when I weighed 240 pounds.  When we were done and the ram was penned, Ted had a huge grin on his face that said, "Wow mom, you really came through for me, thanks!" 

    I'd loved to have seen a video of all that Big Smile

    • Gold Top Dog

    The only thing about Weight Watchers is that it doesn't teach you how to eat low GI, which is necessary to PCOS.

    I follow Core, which is a limited-food plan.  It's not low GI, but its focus on avoiding "energy dense" foods means that low GI foods feature strongly on the "allowed foods" list.  You also learn to listen closely to your body's hunger signals, and become aware of your eating patterns (Why am I eating this?  Am I hungry or just depressed or bored?).  The vast majority of what I eat is indeed low GI.  And I eat until I feel full, and if I feel hungry again in an hour, I eat again, no problem.

    It's working for me.  I had to switch to "Flex" which is the classic plan you describe, for a couple of traveling occasions, and did not lose weight or lost very little.  Flex doesn't work well for me, though it seems to work fine for many WW PCOS members.  Much depends on how your disease presents - not everyone has trouble with insulin resistance as their primary issue.  For some it's just the hormones driving emotional eating.  Or feeling crappy and not exercising.  Or many other issues.

    Yup.  Got my thyroid checked, many times, including as recently as October.  It's always well in the norm.  Very disappointing until I learned about the PCOS. Big Smile 

    I've got a fun idea.  Let's trade some recipes.  Limited food diets can get boring - it's the reason most people fail at them.

    Me first:

    Pineapple mango chicken:

    • Four pounds chicken quarters, skinned, trimmed, and divided at the joints
    • 12 oz fresh frozen pineapple, or one can pineapple if you can find it canned in water or plain juice
    • 12 oz frozen mango chunks or tropical blend
    • 1 cup lime juice
    • 1 tbsp adobo seasoning with pepper (look for MSG free)

    Preheat oven to 350F.  Lay out chicken in a shallow baking dish.   Toss fruit, juice and seasoning in a bowl.  Pour it over chicken.  Bake uncovered for one hour or until chicken is very tender. and juices run clear.

    We like this served over brown rice and it will serve 4 comfortably this way.  I'm allowed one serving of brown rice or whole wheat pasta a day, so this goes nicely with that and is very filling that way.  But, you can also serve it with steamed squash, zucchini, peas, or lentils if your diet is stricter.

    I had the following tonight instead of the mashed potatoes the family was eating with their pork chops.

    Oven "fried" zucchini sticks

    • One small tender zucchini per person (I can eat two at one sitting!)
    • Canola or olive oil cooking spray
    • Preferred seasoning blend (I like Old Bay or my old standby, adobo)
    • Finely grated parmesean or romano (the stuff in the shaker cans actually works best for this)
    Preheat oven to 425F.  Cut zucchini into about 3" strips no more than 1/2 inch wide.  Spray a cooking sheet with the cooking spray liberally.  Place the zucchini on the pan in an even layer, with some space between.  Spray the zucchini.  Sprinkle with seasoning blend, then sprinkle with cheese.  If you aren't restricted on fat (I am), really go for it!  The more cheese, the more crunchy they will be.  But even just a dusting (not even 1/2 a point on WW), gives plenty of flavor and texture.  Bake for 40 minutes or until desired tenderness.  I like mine pretty soggy - that good old deep fried until it's killed dead texture.  But others may prefer a fresher, crisper veggie.

    And one of my favorite breakfasts.  This is for when I come in very hungry from a heavy chore morning.  Cut it in half if you won't be as hungry - but you'll want all the sauce!

    Core eggs benedict

    • Two eggs (egg substitute if you need low cholesterol)
    • 2 slices Canadian bacon
    • 2 tbsp nonfat margarine spread (like Smart Beat's Smart Squeeze)
    • 1 tbsp lemon juice (fresh squeezed is worth it for this!)

    Heat a small shallow pan and lightly brown the bacon.  Remove the bacon and set side by side on a warm plate.  Put about an inch of water in the pan and heat it to boiling.  Lower the heat slightly.  Crack the eggs into a bowl and slide them gently into the simmering water.  Put a lid on it if you like cooked yolk, or leave uncovered if you want it a little runny.  Simmer about three minutes until the white is opaque.  Meanwhile, in a small bowl, combine the nonfat spread and lemon juice.  Carefully turn the eggs, if desired, and cook another couple minutes, until all the white is cooked - or until desired doneness.  Lift the eggs out with a slotted spatula and lay them on the warm Canadian bacon.  Top with the sauce.

    The sauce is a sort of fake Hollandaise, so if you prefer more of a peppery taste or a more creamy taste and less lemon, just experiment!  I also eat the sauce with asparagus or broccoli. 

    • Gold Top Dog

    brookcove

    I've got a fun idea.  Let's trade some recipes.  Limited food diets can get boring - it's the reason most people fail at them.

    Sorry I don't have anything to add, but all 3 of those recipes look yummy!!!

    • Gold Top Dog

    I'm going to start a new thread - I think there's a people food forum somewhere on this site - if not, I'll keep it here.