AIHA or IMHA

    • Gold Top Dog
    I am *SO* glad to hear this today. Go Cyclops, Go! Get that PCVeee up, baby!
    • Gold Top Dog

    GratefulDawg
    They have been great.  They are really teaching the future DVM's how to treat people and its so appreciated.  The phone call updates mean a lot and how they are feeding her Chicken and not neglecting her.  I'm really very happy she is there.  

    jFantastic!!!  So happy she's eating and her count is good!!  Go Cyclops!  I too have  been wondering about that name. LOL
    • Gold Top Dog

    I'm happy to read she is stable.  And, looking forward to seeing a picture of her. 

    Lori

    Good luck tomorrow with the bone marrow aspirate.  I'll light a candle for her tonight. 

     

    • Gold Top Dog

    GratefulDawg
    They have been great.  They are really teaching the future DVM's how to treat people and its so appreciated.  The phone call updates mean a lot and how they are feeding her Chicken and not neglecting her.  I'm really very happy she is there.  

     

      Several years ago, one of our cats had his leg amputated at a nearby vet school because of cancer. They called at least twice a day with an update, and one of the students talked about what a loving cat he was (and still is). They took great care of him.

      I'm so glad her count is stable and she's eating; that's wonderful news. I'll be praying that the results from the marrow draw are promising.

    • Bronze

    holly1984

     

    Sorry it took me so long to reply. Lily is doing great! She has another check up today to try and lower her dose of predisone. Thank you guys for responding. I have gotten so much information and she seems like she will recover from this!

    I will update after her appointment tonight! Wish us luck!

     

     

    Holly1984 - 

    You know this is really your thread and I kind of jumped in the day I joined the forum and probably should have started a new thread.. I think I may have broken some etiquette by jumping in.  I can assure you I didn't mean to.  I am hoping you will update on what is going on with Lily its been a long time since your appointment.  

    Wishing you and Lily lots of luck. 

    • Gold Top Dog

    How is Cyclops today??

    • Gold Top Dog

    They were going to do the bone marrow test today -- still trying to "diagnose" everything -- let's keep him especially in our thots and prayers tonight. 

    • Gold Top Dog

    I'm thinking of her, the sweetie.  I hope Mike is able to update soon.  I feel like I'm reliving my own time. 

    Willow's going for blood work today too.

    • Bronze

    Cyclops w/Giraffe 

    • Bronze

    Cyclops on bottom right.  Takona above left.  Takona was my adult rescue dog that I adopted at an old age of 8 and had 6 good years with.

    The Giraffe on bottom left has been with Cyclops since she was a puppy.  Unlike my 4 year old Border Collie named Domingo, who tears up a new toy within weeks.. Cyclops has had her Giraffe for 9 years and the Giraffe is with her right now in her kennel at OSU Teaching Hospital

    • Bronze

    This is Cyclops with her Frisbee

    • Bronze

    Cyclops had a bone marow test and some ultra sounds.  The good news:  There are no signs of cancer in her x-rays, ultra sounds or bone marrow test. 

    The Bad news: She is not creating new red blood cells.  The doctor said that there are 5 phases in the creation of a new red blood cell and that Cyclops is getting to the 4th phase and something is happening before #5.  She said that its a little unusual for it to develop that far before being killed and that most dogs it happens between 1 and 2. 

    If none of that makes sense to you, then I feel better that I am not alone.  I have no idea what they are talking about. Also I have no idea why they are saying this is not IMHA but yet her immune system is killing her baby red blood cells.  I thought that *WAS* the definition of IMHA.  Regardless what they want to call it, the drug treatments and everything else seem to be the same. 

    Now we are at a crossroads.  The doctor wants to put her on Cyclosporine.  The estimate is 800.00 per month just for the drug.  On top of that will be the weekly blood work.  I really don't think that we can do that for more than a month.. maybe 2.  Most of what I read on the internet does not show any statistics that Cyclosporine has a better long term prognosis than Azathioprine.  The doctor on the phone said that the Cyclosporine woud work faster and might prevent the need for another transfusion of blood. 

    The doctor said to plan on 6 months.  She said they'd taper it down when possible to possibly save money later.  But no guarantees.  Needless to say that doing this would mean no way I could explore Chinese medicine or acupuncture - something I was planning on doing had the costs stayed the same as Azathioprine.

    Yesterday when she asked about the Cyclosporine I said yes.. whatever it takes.  She said fine she'd change the medicine.  After I got off the phone and got back to reality I realized I must be an idiot for saying yes.  So I think I have to call them today and end up sounding like a horses ass and tell them no to the Cyclosporine.  This drug is only 40 dollars less than my mortgage payment.  I wish I could afford 2 mortage payments per month, I'd have the house paid off by now.  You see.. this is no longer a choice I get to make - I think I have no choice but to refuse the Cyclosporine treatment.  My wife is going to call the drug maker Novartis Animal Health and ask for assistance or a price reduction.  I am not very optimistic about what their answer will be.  

    Cyclops came through the bone marrow test fine.  Her PCV is holding steady at 21.  Her appetite is still good and her spirits are still high.  I will update tonight and tell you all how I handled telling the teaching hospital that I can't afford the drug of choice.  Wish I would have bought myself some time and said "I'll think about it" but I was just caught up in the moment about getting her results.. happy as hell she was still stable and I just spoke before I thought.  

    I am certain that if I told any of this to someone who either dosen't like dogs or just thinks dogs are objects they'd send me to the insane asylum.  My own father told me to euthanize "the poor thing" the second she was diagnosed.  He said you can't afford it and its just making her suffer.  I wish things were that black and white for me.  I love the dog as much as I would if the dog were a person.  Having emotions really complicates everything dosen't it? 

    Once again.. thanks for giving me a place to document my thoughts.  Thanks for your suggestions and your well wishes.  

    • Gold Top Dog

    Don't feel stupid for calling back -- one dose isn't going to make/break it -- and this is a bigger decision than *they* wish it was. 

    Tell them to use azathiaprene -- because *even if* they have to do another transfusion, the cost of the cyclosporine is way over that.  Six months is likely overly optimistic -- and I'm not going to assume that it's *better* than azathiaprene.  We very nearly had to switch in mid-stream with Billy -- and it's like I said -- on the other end the wean off gets REALLY scarey because the cyclosporine only comes in certain doses and you have to make huge jumps in the wean-off.

    This is where the TCVM ****WILL**** help.  The TCVM will help pick up the slack and get the body to build blood. 

    I think you'll also be able to mitigate the damage of either steroid -- cyclosporine or azathiaprene.  Tell them you've been doing the numbers and you just will NOT be able to afford the cyclosporine and running out of money mid-treatment just isn't smart. 

    • Gold Top Dog

    Mike, I would have done the exact thing you did when you told them to go ahead with the expensive drug and then realized that there is no way to afford it for so long. I too have no idea what all of that means as far as what they told you concerning the red blood cells.  I just know that I feel for you and your wife and pray that Cyclops can beat this. I have had so many people tell me I'm crazy to spend what I have spent over the years but I just smile and tell them I am sorry for them because if they don't understand then they have never experienced the unconditional love a dog can share.  They give so much we owe them our best efforts.  Whatever the outcome you can know, for whatever it's worth, that you are considered by me as one of the good guys forever and ever.

     Thanks for posting the pic's of Cyclops, she is adorable and I love the fact that she has nurtured her giraffe for so many years.  Stuffies last hours in our house. LOL

     Cyclops will remain in my thoughts and prayers.

    • Gold Top Dog

    JackieG
    Cyclops will remain in my thoughts and prayers.

    Ours too.  She's a doll!!  I especially love the picture of her running with her frisbee. 

    Mike, it might be possible for them to combine two drugs together to either lower your dose which would lower your cost and/or get a better outcome than just one on it's own.  I know on the other forum lots of dogs are on Prednisone with something else.  It might be worth at least asking about. 

    Lori