Debbie R
Posted : 12/15/2006 2:19:55 PM
Barry, it is a strange way for the disease to progress, but with this insidious disease who knows?
You didn't mention what the drug was, but I have heard of this one, there is an 800# where the manufacturer will help w/ the cost.
The monthly cost for riluzole is approximately $600. The manufacturer (Rhône-Poulenc Rorer; telephone, 1-800-340-7502) has established programs to assist patients in gaining access to this drug and other support services.
Also if I were you or your mom I call MDA for guidance and help.
I will keep praying.