Another little Billy update (IMHA)

    • Gold Top Dog
    It's a whole month before we leave and trips 'home' tend not to work out (Mom tends to demand a trip home and then at the last minute she'll say "don't come").  But at least I can begin to plan this one!
     
    But yeah -- isn't it awesome that Dr B will consent to do this for me?  Because if I couldn't have someone unafraid to deal with the IMHA I couldn't leave him.  Period.  But don't think I"m not nervous -- I am.  Such a thing as "separation anxiety" (which Billy CAN demonstrate a lot) can trigger the IMHA -- so it's not without risk.  But an acceptable one I hope.
    • Gold Top Dog
    Gosh, sometimes the "family drama" makes me want to disconnect the phone, pull the blinds and curl up with my dogs even more.  I guess we all have it though and you're a good daughter for working this out so you can try to make the trip. 
     
    I'm sure that Billie will be spoiled and pampered just like he was at Gainesville, so hopefully he'll barely notice you're gone [:)
    • Puppy
    Callie, Billie is so blessed to be a part of your family, as you are blessed to have him. I can honestly say that I have spent the better part of my entire day reading the forums here and researching my own problems and I have read much about Billie. I am in awe of your determination to save him as well as his determination to keep fighting. Kudos to all of you. The things our beloved pets go through to survive and keep us sane by being here should humble us all. WTG! Billie, you're doing well! [:)
    • Gold Top Dog
    Here's another little Billy update.  I got a call from Dr. B (our regular vet)
     
    Last Saturday we took him up to Dr. B vet for a full CBC (complete blood count) and to have them check his cyclosporine level (the only way they can keep track of it is to monitor it in the blood).
     
    Test came back today and Dr. Bailey called me -- he was REALLY pleased.  Some of the liver values are a bit high -- but honestly with all the steroids he's on that's expected -- but they aren't 'badly' high -- just a BIT high.  And it's exactly the levels they would expect to be high.
     
    Ok, I gotta get a wee bit technical here and some day those reading this can 'show off' their knowledge courtesy of me, ok??  Cos it's medical-babble but it will make this all make sense.
     
    You've seen me talk about "PCV" = "pack cell volume" -- that's the easy way to tell how many red blood cells he has per 'unit' of blood.  They 'spin' the blood in tiny tubes and then put it against a 'scale' and read it.  It's not super precise -- it's simply read by a scale they measure. 
     
    The other term you hear all the time is "hematacrit" = SAME THING as PCV **except** it's not guesswork at all -- it's literally measured/cells are counted by a machine.  So the PCV and hematacrit measure the same thing -- one is just more 'precise' and machine read than the other. 
     
    "CBC" = "complete blood count" (you've heard this on medical shows before "What's his CBC?") -- you've also heard folks say on here "have a blood panel run" -- a CBC isn't just one thing that's tested but the whole array -- but it's going to give you this whole list of 'values' (which is Greek and beyond to 99.99999% of us) -- but because it gives you this whole list of stuff -- it isn't just a few numbers that are bad or good, but they actually look at how one will 'relate' to another.  That's why I said above that the values that are a bit high are ones they EXPECT to be high 'cos it's predictable but they also know what 'range' that needs to stay within ... and it is!
     
    Back to Billy (and yes, you'll need to refer to the above like a cheat sheet to translate this)-- Interestingly -- his PCV last Saturday was 36/38 (typically they'll use a couple of these teeny glass tubes just in case something's off so often the PCV is an 'average' of two numbers).  So let's say Billy's PCV was 37 last Saturday.
     
    SAME DAY -- same syringe of blood pulled in fact -- they sent a large quantity of the blood out for a CBC profile among other things.
     
    Same blood, pulled at the same time, - the hematacrit came back 43.6 -- that's a pretty big jump from 37!!  (normal is like 35 - 48).  Why the difference?  No one really knows.  But his gums LOOK like the 43 -- the        37 reading suprised all of us, but that's still an ok reading anyway.
     
    The iron and calcium (two values we were concerned about) were FINE. (that means the veggies and the Knox NutraJoint are doing what we want them to do diet-wise and doing it naturally so he doesn't have to take more pills!)  In addition the Nutra-Joint is going to help fight the side effects from the pred messing with the cartilage in the spine.
     
    The cyclosporine (that's the super steroid drug he's taking that's the big guns to keep the immune system from over-reacting and destroying the blood) level was WAY DOWN.  (not just 'lower' but far lower than the 'target' they need it to be at).  That's an "oops".
     
    Hmmmm -- at this point they're going to have me put back up the cyclosporine a bit so it doesn't continue to fall -- I've got an email in to Dr. Goldkamp because I'm wondering  if the number is so important because they are WANTING to reduce the prednisone badly enough to use the cyclosporine to compensate for it.  See Cyclosporine (although far more expensive to be honest) is going to cause far fewer side effects than the prednisone. 
     
    But this isn't 'bad' in any event BECAUSE he's been at this low low level of cyclosporine and his blood is still 'holding'.  Meaning -- the immune system isn't over-reacting.  That's a GOOD thing.
     
    The whole cyclosporine thing is a mystery -- of why it absorbs sometimes and sometimes it doesn't.  strange strange!!!
     
    But that's the Billy news anyway.  He LOOKS good!!!
     
    And yes, we have been 'determined' to do the best for him, but I have to emphasize -- you can't just "be determined" and win at IMHA.  The odds are SO stacked against you, all you can do is the best you can and be super vigilant and take it day by day.  I'm so grieved that so many do NOT survive this.  And as a buffy coated cocker the odds were way against him.  My precious vet admitted to me today that he truly did not think Billy would make it this far -- and he's THRILLED that he is. 
     
    I keep saying I think the Alpha of all Alphas has a plan for this -- I don't know what it is but we're trying our best, and since the Alpha of all Alphas has to help make sure this is affordable for us, the ball's been far more in HIS court than anyone knows.  Prayers and good thoughts have been SO integral in this.  I have to turn this back around once again and say THANK YOU FOLKS!!!! With all of my heart!!  You've kept Billy and I both encouraged -- and yeah, every time he gets a post that calls him by name I READ IT TO HIM!!!  He **loves** hearing his name!! The tail just goes crazy - nubbin tho it is.
    • Gold Top Dog
    Callie, I'm so glad to see that the "medical details" of Billy's health are still holding strong and contain positive news.  And it's even better to hear that his emotional state is so great, too! 
     
    Billy, I was thinking of you tonight when I was visiting with my neighbors, who have a buffy coated Cocker who looks a lot like you.  I was giving him lots of extra hugs and kisses, thinking some of them were for his "twin" on the other coast!  Yay Billy!
    • Gold Top Dog
    Poor little guy -- nothing is easy.  Thursday morning he took the last of the Clavamox they had him on for that gonzo UTI he had 3 weeks ago.  All of a sudden last night I looked down and ACK!!!!  a stream of urine leading to the gate into the kitchen and a very SAD Billy.  He'd been teasing me and I thot it was just cos he wanted supper early -- Bad Mom!!  He was wanting out.  However I'm glad I caught it!  I thot it looked kinda strange so I laid paper towel over it rather than just swiping it and uh oh bloody urine.  More like last time -- 4" wide path of urine with a 2" wide path of blood.  Darn.  Then I'm trying to make sure which of 3 dogs it was from.  But I see the tip of his 'willie' looks wet so I swabed it with paper towel -- blood.  *sigh*
     
    Got hold of my vet on his cell (bless that man!!) and since I was already going to meet one of his techs this morning to pick up more cyclosporin he had her give me a stronger dose of Clavamox.  I called UF and emailed Dr. Goldkamp to get verification that this was all right (any antibiotic can trigger the IMHA again).
     
    Bless his heart, he's still in a lot of pain -- but apparently the Clavamox was just keeping the UTI 'under control' rather than actually treating it.  So we try the stronger one now - darned pred is what's causing the UTI and that IS coming down slowly.  But gosh I hate him hurting like this.  He was all upset because I discovered he did wet his crate (but he's getting really good at pushing the pads out of the way after he uses them so I didn't see it at first). 
     
    Managing the side effects of the meds isn't easy, but we're still going one step at a time.
    • Gold Top Dog
    I keep saying I think the Alpha of all Alphas has a plan for this -- I don't know what it is but we're trying our best, and since the Alpha of all Alphas has to help make sure this is affordable for us, the ball's been far more in HIS court than anyone knows. Prayers and good thoughts have been SO integral in this.


    Yes, He does!  I'm still a prayin too.  I'm glad to hear some good news, sad to hear about the Clavamox, and I'm still keeping not only Billy, but you, your family, and the other puppers lifted up too!  Keep on getting better Billy!
    • Gold Top Dog
    Oh, poor Billy!  It's so frustrating to deal with all the side effects with medicines that you can't totally eliminate yet.  Maybe you've already talked about this in earlier posts and I've forgotten, but can he have Cranberry powder or anything like that to help with the urinary issues while he's on the other meds?  It sure will be nice when he can be totally weaned off those steroids.
     
    Billy, don't feel bad about having an accident.  Mom understands, and she's doing all she can to help you feel better.  You just keep staying strong and in good spirits!
     
    • Gold Top Dog
    I remember all those terms all to well.  I am just so happy Billy is doing as well as he is.And you are dead right about one thing--it isn't up to you or your vet, but to God.  No matter what the treatment, what the care, that disease is so horrible it is almost like it has a mind of it's own.. All the vet can do is treat it, all the dog can do is fight it, and all you can do is tend the dog, love the dog, make sure you do all you can for it. 
     
    By the way, my Hunter, lost to AIHA on Oct. 16, 2003 would have been 7 years old today.  I say Happy Birthday to his sister, KayCee, here with me, and to Hunter at the Bridge these almost 3 years. Happy birthday babies.
    • Gold Top Dog
    I'm gonna take that one a little further....
     
    Billy, YOU did everything you could to TELL mom that you had to go.  Us silly humans sometimes don't get it and I hope you will forgive mom for making that mistake that caused YOU to pee in the house.  You just need to focus on getting all better for all of us.
     
    Oh Callie, if it's not one thing it's another, huh?
    • Gold Top Dog
    Billy, just keep doing your best... that's all anyone can ask for or want and you're doing a fabulous job at it!