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AIHA or IMHA

Last post 11-22-2009 11:43 PM by calliecritturs. 1644 replies.
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  • 10-16-2009 8:36 AM In reply to khoeks

    Re: AIHA or IMHA

    Honestly an hour away is good -- you don't make the trip often but just getting that input is SO valuable. 

    When the PCV (packed cell volume) falls so low the nausea is a result of that.  Just getting blood DOES make them feel better.

    I'm just going to plop the index right here for you -- it's not linked yet (which is why I haven't posted it) but you may want to check out things like the "definitions" and general overview -- Also -- longer term the use of milk thistle is hugely helpful to enable their bodies not to be damaged by the drugs:

     

    General Introduction/overview of IMHA  -- Page 1/Post 2, Page 14, Page 65/Posts 12 & 15

     

    IMT & IMP (Thrombocytopenia & Pancytopenia) -- Page 1/Post 7, Page 54/Post 7, Page 58/Post 11

     

    First post by Gratefuldawg re: Cloppy’s IMHA  -- Page 1/Post 15

     

    Milk thistle & Sam-e  and Marin, Denosyl, Denamarin -- Page 2/Posts 3-4, Page 19/Post 6 – mid-page, Page 48/Posts 10 & 12, Page 49/various, Page 88 (later pages contain comparative info)

     

    Financial help & description of Care Credit  --- Page 3/Post 8

     

    Triggers & discussion of “triggers” of IMHA  -- Page 3/last half of page, Page 26 /Last several posts

     

    Dictionary of IMHA terms – helpful for those beginning this journey & signs of relapse -- Page 4/Post 5, Page 34/Post 7, Page 89/Post 1

     

    Emotional toll and decision-making difficulties of  guardians  -- Page 4/last 3-4 Posts

     

    NRIMA (non-regenerative immune mediated anemia) & description of that specific type of IMHA  -- Page 11/Post 7

     

    Pred side-effects (the more severe ones -- beyond drinking/eating -  muscle spasms, sudden arthritis onset, emotional/ muscle side effects of pred (including suggestions & pet massage) -- Page 12/Last Post, Page 15 & Page 39/Post 3, Page 72/Post 12, Page 88

     

    Prednisoone & cyclosporine side effects (particularly various– skin problems & UTIs-cyclosporine side-effect &  discussions) -- Page 13/1st half-page of posts, Page 18/Post 9-mid-page, Page 22/Post 8, Page 34/Post  12, Page 38, Page 48., Page 60 & 61/ Page 63

     

    Food suggestion helps specifically for IMHA -- Page 14/Post 1, Page 42

     

    Stomach protectant  -- Page 14/Post 1, Page 31/Post 3, Page 34/Post 7 & 9, Page  40, Page 66/Posts 14 & 15, Page 67/1st half pg, Page 87

     

    Cyclosporine levels – need to have blood word drawn to check  -- Page 15/Post 8

     

    Nose/dry/cracked -- discussion of ultra dry nostril/edges of lips as cyclo side effect -- Page 18/Post 9-mid-page

     

    Herbs generally & how to use & choose -- Paged 20/ Post 4

     Cyclosporine Generic– IMPORTANT POSTS -- Page 23/Post 13 & Page 40,, Page 43/Post 11, Page 60 –two forms of generic cyclosporine; Page 97 costs; Page 98 more specifics on modified/un-modified and where to get. 

    Doxycycline – IMHA occasionally as mis-diagnosed tick disease or caused by tick disease -- Page 24/first half page &Page 34/Post 7

     

    Giving Meds easily - suggestions on giving pills, organizing & training-- Page 25/Posts 4 & 5, Page 40/Post 5 – Page 41; Page 97/Post 11

     

    Iron – discussion of serum iron & checking bloodwork for after a few months -- Page 26/Posts 4,6 & 9

     

    Rabies vaccine (must not have) – rabies titer discussion (to obtain state waiver) -- Page 27/Post 3 & next several posts

     

    Not responding/Obtaining help - going to a vet school vs. specialist – don’t wait! -- Page 28/Post 2+ several

     

    Page 30/Posts mid-page, also some page 33– discussions on skin problems as side effects from cyclosporine & pred

     

    Aspirin– Baby aspirin doseage  & discussion of stomach protectants - Page 31/Post 3, Page 66/Posts 14 & 15

     

    Wean off -- discussions of lowering/weaning off drugs – Page 34/various, Page 46

     

    Signs of relapse Page 34/Post 7

     

    UTIs– discussion UTIs as cyclo side effect & treatments -- Page 34/Post  12, Page 38, Page 48., Page 63

     

    Cyclosporine absorption– general discussion re: dairy inhibition of  absorption Page 39/Last half of page

     

    Beef heart – iron foods Page 42

     

    Page 44 – discussion of drugs NOT to use w/IMHA (triggers)

     

    Page 45/Post 12, Page 68/Post 3, Page 72/Post 3  – Slippery elm cocktail (suspected ulcer/stomach help)

     

    Page 49/Post 3, Page 57 (all)  -- Milk thistle & sam-e , Marin, Denosyl & Denamarin (discussion/contrast)

     

    Page 50/Post 3 to Page 51, Page 55/Post 15  – Vaccines as IMHA triggers

     

    Page 53/Post 3 – good post regarding Killer T-cells & IMHA

     

    Page 53/Post 8 -  Homeopathics to treat & help treat IMHA

     

    Page 57 – Various discussions on milk thistle

     

    Page 63 & 64, Page 76/Post 6 – discussions about drugs to treat UTIs while on cyclosporine (Baytril particularly)

     

    Page 66 – discussions on cyclosporine vs. azathiaprene and how long to work

    P

     

    Page 72/Post 5 – Pepto Bismol contra-indicated

     

    Page 76/Post 6 – Dr. Dodds discussion of IMHA triggers

     

    Page 70/Post 3 – TCVM (Traditional Chinese Veteirnary medicine) helpful, acupuncture/ Chinese herbs

     

    Page 80 & 81– food discussions (diet with IMHA generally)

     

    Page 82/Post 12 & Page 83  – various drugs/recommended drugs for IMHA & general side effects vs. “official stance” of what vets say about side effects

     

    Page 88/Post 12 – Knox Nutra Joint to help with arthritis side effects

     

    Page 91/Post 15 – More on baby aspirin

     

    Page 92/Post 13 – various things that can inhibit cyclosporine absorption

     

    Page 95/Post 5 – most of page – discussion of various heartworm preventives/flea preventives use with IMHA dogs

     

    Page 97/Post 11 – temporarily lowered PCV can be caused by the spleen re-storing it’s supply of blood

     

    Page 98 – discussions throughout page of the weakness some dogs show for several weeks as IMHA side effect

     


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  • 10-16-2009 10:29 AM In reply to calliecritturs

    • khoeks
    • Not Ranked
    • Joined on 10-16-2009
    • Posts 6
    • Points 5

    Re: AIHA or IMHA

    Thank you for the index.  I'll go through it this weekend. 

    Pennie seems to be better this morning.  My husband is home with her (I guess there is one advantage to his unemployment) and said that she is accepting affection from him and wagging her tail (well, her nub of a tail).  Although she is still lethargic, this is a great improvement. 

    I, on the other hand, forgot to wear a suit to work today and have to have a picture taken for the website of my law firm.  Guess I'm running home to change. 

    • Post Points: 0
  • 10-16-2009 1:32 PM In reply to khoeks

    Re: AIHA or IMHA

    khoeks:
    Thank you for the index.  I'll go through it this weekend.

    The purpose of it isn't to make you go thru *everything* but to give you an idea of where you can find certain info -- until I get it linked in you still have to plod thru but at least you don't have to read it all

    khoeks:
    My husband is home with her (I guess there is one advantage to his unemployment) and said that she is accepting affection from him and wagging her tail (well, her nub of a tail).  Although she is still lethargic, this is a great improvement

    Seriously -- we decided that Billy's **tail** was the window into how he was feeling.  If he quit wagging -- we KNEW he was crashing.

    khoeks:
    I, on the other hand, forgot to wear a suit to work today and have to have a picture taken for the website of my law firm.  Guess I'm running home to change. 

    Gee ... like you might have been pre-occupied???  *rolling eyes* -- truly, that's one of the reasons why I stick with this.  The emotional toll of this disease is unreal -- I owe MUCH to the rest of the folks on this board because they propped me up BIG TIME when Billy was sick.  He didn't respond and had many transfusions and I spent most of every day with what felt like a "hot rock" in my gut. 


    • Post Points: 0
  • 10-16-2009 3:44 PM In reply to calliecritturs

    Re: AIHA or IMHA

    Holy crap ....I'm back!!!  Looks like a book since last I seen.

    For some reason my firewall wouldn't let me on this site.  Anyone ever have this problem?  I probably shouldn't say this over the internet but I had to turn off my firewall in order to get on here.

    KUDOS to Callie....looks like you are still doing GREAT work for everyone here.

    Hoping all the best and sending prayers out to everyone dealing with this disease and to those who have lost their loved ones to it.

    I've finally got some time to sit at the desk so I'm going to log off and FIX THIS STUPID CRAP OF A COMPUTER.

    Hopefully if everything works for me I'll see you in a few hrs.

    Cheers,

    Johnny & Tessy

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  • 10-17-2009 1:55 PM In reply to Johnny&Tessy

    Re: AIHA or IMHA

    On the lighter side what does everyone think of the dog friendly Honda Element.  If I could afford one, I'd be all over it!

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  • 10-17-2009 6:03 PM In reply to khoeks

    • FrisbyPI
    • Not Ranked
    • Joined on 07-17-2009
    • Rhode Island
    • Posts 120
    • Points 0

    Re: AIHA or IMHA

    khoeks:
    As for the drugs, she is currently taking 40 mg of Prednisone and 25 mg of Azathioprine a day.  The vet said last night that based on her history (mostly this relapse) he believes that she will need to be on a small dose of each for the rest of her life. 

    I'm glad Pennie was able to come home and I'm so sorry she had a relapse. Frisby has been on the prednisone/azathiaprine regimen since June (after an initial trial with just prednisone) and we are very slowly decreasing the doses. We're doing a decrease every 4 weeks. (It's soooo slow, but she's old and it's allowing us to make sure she's OK with the decrease.) The vets warned me (knowing how impatient I was about getting her off the prednisone) that it would take a long time to get her as far off the meds as possible. She's feeling better, and the vet and I have talked a lot about whether she'll need at least a small does of one or both meds for life. She might (and I've decided I have to be OK with that), but as the levels have decreased, her 'old self' has really started to come back. The panting is now gone, as is the pacing. She still wants to eat, but she's not "starving" the way she was. We saw the improvement with those things really start to happen when she went to pred once a day (instead of twice). It's continued to improve. It was a good 3+ months of the hard side effects when the weather was hot (made it worse). The lesson we learned is that the azathiaprine does take 10-14 days to really start working. That was hard to deal with.

    Frisby and I send our love and prayers for Pennie's healing. You'll find tons of support here, too.

    Kate and Frisby
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  • 10-17-2009 6:15 PM In reply to FrisbyPI

    • FrisbyPI
    • Not Ranked
    • Joined on 07-17-2009
    • Rhode Island
    • Posts 120
    • Points 0

    Re: AIHA or IMHA

    A quick note to check in and catch up. As I emailed Callie last night, I'm back to a crazy work schedule after a semester of sabbatical leave (which turned into "take care of Frisby" leave); 're-entry' has been totally nuts.

    Frisby update: As I mentioned in the post above, we're continuing the very slow drug wean and she's responding well both energy and spirit wise. Her crit still hasn't reached 30, but it's stable at 28 and everything else is looking better and better. (She's the only creature in our household with a decent cholesterol level!)  She wants to do more of her "usual" activities and even played with a toy for awhile last night. Callie, I was giving her Pet Tinnic (liquid vitamins with a lot of iron per Dr. Dodd's advice) but I had to pull back because it was too much for her. I'll add that back once a day (instead of the recommended twice) to see if that helps her crit/iron, too. Thanks to everyone for your continued support.

    Love, positive energy and prayers for all.

    Kate and Frisby
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  • 10-17-2009 6:38 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    Off topic: How do I get it to be on reply notification all the time?  I get one notice then I have to remember to turn it back on or don't get them after that!

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  • 10-17-2009 7:03 PM In reply to Smokie's Mom

    Re: AIHA or IMHA

    Smokie's Mom:

    Off topic: How do I get it to be on reply notification all the time?  I get one notice then I have to remember to turn it back on or don't get them after that!

    *huge sigh* That was a decison the powers that be made when they installed the software.  A few people complained at the time they were being "deluged" with emails (and that's how many of us kept track of a thread -- reading the notifications) and so they made it so you only get notified ONCE (after your last post usually) so you **do** have to keep turning it on.

    Crazy but true. 


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  • 10-17-2009 8:59 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    FrisbyPI:
    She still wants to eat,

    Willow was such a fussy eater before Prednisone.  Now, even after 10 months off, she rarely misses a meal.  I was only joking when I mentioned it to the vet. But, she said sometimes their brain just remembers that. 

     

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  • 10-17-2009 10:42 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    FrisbyPI:
    Callie, I was giving her Pet Tinnic (liquid vitamins with a lot of iron per Dr. Dodd's advice) but I had to pull back because it was too much for her. I'll add that back once a day (instead of the recommended twice) to see if that helps her crit/iron, too. Thanks to everyone for your continued support.

    You know what I'm glad you said that -- cos Kee Shu is going thru a little tough time (she's 19 -- life at that age is an accomplishment any way you look at it!!) and HER crit is really low.  So I need to see if I can get some for her.

    However -- if the added iron causes constipation try PRUNES!!!  They are, themselves, high in iron **and** if you're giving an iron supplement that constipates them, the prunes can help balance that.

    Mine think they are a major treat (sweet, sticky = yum) and generally I bite a piece off and then offer them a piece of "what Mom is eating" and they think it' rocks.  But go easy -- just a prune a day can be adequate (like for Kee I wouldn't even give her a whole one).  But they can sure be helpful.  Just see how many it takes to balance it out .

     


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  • 10-17-2009 10:42 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    FrisbyPI:
    Callie, I was giving her Pet Tinnic (liquid vitamins with a lot of iron per Dr. Dodd's advice) but I had to pull back because it was too much for her. I'll add that back once a day (instead of the recommended twice) to see if that helps her crit/iron, too. Thanks to everyone for your continued support.

    You know what I'm glad you said that -- cos Kee Shu is going thru a little tough time (she's 19 -- life at that age is an accomplishment any way you look at it!!) and HER crit is really low.  So I need to see if I can get some for her.

    However -- if the added iron causes constipation try PRUNES!!!  They are, themselves, high in iron **and** if you're giving an iron supplement that constipates them, the prunes can help balance that.

    Mine think they are a major treat (sweet, sticky = yum) and generally I bite a piece off and then offer them a piece of "what Mom is eating" and they think it' rocks.  But go easy -- just a prune a day can be adequate (like for Kee I wouldn't even give her a whole one).  But they can sure be helpful.  Just see how many it takes to balance it out .

     

    *if*

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  • 10-17-2009 10:42 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    FrisbyPI:
    Callie, I was giving her Pet Tinnic (liquid vitamins with a lot of iron per Dr. Dodd's advice) but I had to pull back because it was too much for her. I'll add that back once a day (instead of the recommended twice) to see if that helps her crit/iron, too. Thanks to everyone for your continued support.

    You know what I'm glad you said that -- cos Kee Shu is going thru a little tough time (she's 19 -- life at that age is an accomplishment any way you look at it!!) and HER crit is really low.  So I need to see if I can get some for her.

    However -- if the added iron causes constipation try PRUNES!!!  They are, themselves, high in iron **and** if you're giving an iron supplement that constipates them, the prunes can help balance that.

    Mine think they are a major treat (sweet, sticky = yum) and generally I bite a piece off and then offer them a piece of "what Mom is eating" and they think it' rocks.  But go easy -- just a prune a day can be adequate (like for Kee I wouldn't even give her a whole one).  But they can sure be helpful.  Just see how many it takes to balance it out .

     

    *if* thats

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  • 10-17-2009 10:42 PM In reply to FrisbyPI

    Re: AIHA or IMHA

    FrisbyPI:
    Callie, I was giving her Pet Tinnic (liquid vitamins with a lot of iron per Dr. Dodd's advice) but I had to pull back because it was too much for her. I'll add that back once a day (instead of the recommended twice) to see if that helps her crit/iron, too. Thanks to everyone for your continued support.

    You know what I'm glad you said that -- cos Kee Shu is going thru a little tough time (she's 19 -- life at that age is an accomplishment any way you look at it!!) and HER crit is really low.  So I need to see if I can get some for her.

    However -- if the added iron causes constipation try PRUNES!!!  They are, themselves, high in iron **and** if you're giving an iron supplement that constipates them, the prunes can help balance that.

    Mine think they are a major treat (sweet, sticky = yum) and generally I bite a piece off and then offer them a piece of "what Mom is eating" and they think it' rocks.  But go easy -- just a prune a day can be adequate (like for Kee I wouldn't even give her a whole one).  But they can sure be helpful.  Just see how many it takes to balance it out *if* thats the problem.


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  • 10-18-2009 6:27 PM In reply to calliecritturs

    Re: AIHA or IMHA

    Willow is sleeping next to me on the couch. . .and snoring loudly!  She seems really tired today.  And, she's been waking up licking and licking and making noises with her mouth.  I'm not sure if it's nausea or if it's her teeth or what.  She's eating well though. 

    She's going in tomorrow for a check up and some blood work anyway so I'm not too worried. 

    I'm baking a pumpkin bread to bring with us for the office staff.  Coffee

     

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