Can't believe I'm needing to ask for yet more prayers....

Glenda -
 
Our thoughts and prayers are sooooo with you and your family!!!!!
 
-K

Pick on Glenda month (or year or two or three) I could deal with!  I'm kind of used to sh*t happening.  But gosh, now it's pick on Glenda's FAMILY month and this is soooo much tougher to deal with.
 
The only word I have is that they are doing an MRI of Jon's heart today............my sister has GOT to be an absolute mess.

And they are going to pull through it because they have you, one helluva tough old broad.
 

Geeze, Glenda I am lighting candles tonigt this is all your mother, sister and you  need. I will say a ton of prayers too.

This is frustrating.  I haven't heard from my sister but Mother did....and Mom's information isn't always transmitted correctly......Jon had a 2 hour MRI today and is going to be "zapped with a laser" to fix the problem on Tuesday so will stay in CICU until that time....hopefully in the morning I can get more information.

I'm so sorry your family is having to deal with all this crap!!  My prayers are certainly with you.

Oh Glenda, I am just reading this now. Please know that we will be praying here for good health to come your families way.
Stay strong, it will all be okay
Candles buring in the window for you and your family.
(((HUGS)))

(((((Glenda))))).....Prayers and healing vibes being sent to all that are in need.

Prayers coming for you!

Oh God.  The MRI was read, the condition is not what they thought it was.  It is genetic, it is (forgive my spelling) arythamagnetic right venticular displasia.  It can't be fixed.  Something to do with fatty deposits in the heart that are genetic in nature, not diet related.  They are doing some procedure tommorow, but I didn't ask what, sis is a wreck, and all they can do is MANAGE the condition, but no cure for it, no treatment.  If it progresses, he'll need a new heart.  he is 26 years old...a college professor, a new father.......
 
They are taking my Mother to my oldest sisters vacation cottage, which should just be a hoot for her, BUT she does want to see the great grandkids, the thinking being that Judy can take a turn, Mother can still be fairly close to Sharon, won't be alone and of course this lessens the guilt that Sharon would feel at leaving her.  I think that if I went down and stayed with mother she would get more paranoid than she already is, so this is likely the best solution, although I sort of feel a bit slapped in the face.....you know, the old, she's the baby so not as capable syndrome.....but am trying to remember that this isn't about me.  Apparently my mom woke up in the middle of the nite convinced that she didn't have a pulse and was up for an hour or more taking her BP......which was high again, but she had a low battery warning on the blasted machine and was worked up so maybe it wasn't all that high. 
 
Can someone just shoot me?

Oh wow, what a horrible diagnosis...I will light a candle tonight for everyone and keep the prayers coming.  God bless...

A bit of an update.
 
There are fatty deposits on the wall of the right ventricle where there is supposed to be nothing but muscle.  These deposits cause the heart to "misfire" sometimes which is what happened to Jon on Friday.  Today they will implant a defibulator under the skin so that if his heart does misfire, the defib will shock it back into a regular rythem.    He will have to change his lifestyle rather drastically...no more strenuous exercise, which will be tough since the entire family runs, rows, etc, but it beats death.  It sounds very much like this is a very managable condition and since they make advances each and every day, it's entirely possible that someday there will be a fix.
 
My sister is a total wreck. And, while I'm not sure that this was the best thing for my Mom, I am glad that she took her to Judy's.  That gives her the peace of mind of KNOWING that someone is always with Mother and me too actually.  I'm a half hour away and she gets so worried about the price of gas that this works a bit better.  Besides, Judy got a 3 week vacation to Greece in May so darn it, she can take a turn being sick with worry!  Yeah, I know, I'm a witch. But, ya know?  It feels kind of good NOT to be on call for a day or two.
 
So, continued prayers for Jon and his family? 

Continued prayers winging your way.  Be well and always remember to take care of yourself.

Of course Glenda, prayers sent your way. I hope all the best for all of you.  BIG BIG Hugs.

Glenda - I can't remember where, but I posted not too long ago about a very good friend dying at the age of 31.  We found her in the bathroom and did CPR but it was too late.  When they did the autopsy, she had exactly what you're describing.  They said it was a genetic defect that caused the the heart to misfire.  She had told me that she had heart palpitations but the Dr.'s told her it was first from BCPs and then from stress and they never did any tests.  I was told that had they done even an EKG, they might've found it and could've implanted a pacemaker and she'd have lived a long happy life. 
 
So, for your nephew,  this is a blessing in disguise.  He's going to get the treatment he needs and although it will change his life, he can learn to manage the illness and live a long and healthy life.  Sending prayers for all of you though.  This has certainly been a rough time.