calliecritturs
Posted : 8/21/2009 6:04:38 PM
You've come to the right place to get some information and support -- there is an ENORMOUS thread (like over 70 pages now) that's only been running since Christmas -- just with bunches of folks dealing with this.
My Billy (yep, in my pic) is an IMHA survivor -- it's a horrible disease, and very difficult sometimes to get them to respond. I will email you my phone -- my husband and I try to be available to folks to help with information and support and just to answer some of the billion questions you have. My Billy had six transfusions in a month -- it can take a while to get the drugs to kick in and get the body to "lay off" itself.